So the surgery that Grayson had this month was to reimplant his ureters and close the opening the doctor had made a year ago. The success rate of this procedure is very high and should take care of the issue for Grayson. I am so thankful that we had access to such awesome doctors and that his condition was spotted so early on before significant damage to his kidneys could occur.
The best way I know to share about Grayson's latest surgery is through pictures and what I wrote on Instagram during that time...
Grayson woke up to nurse and Eli came into my room saying he'd wet the bed at about the same minute. So I laughed to keep from crying. Grayson cried while I stripped down Eli's bed but thankfully now he has stopped. So we are pacing the living room to the best of the washing machine. And the sone from my childhood pops into my head "I'll cast all my cares upon you. I lay all of my burdens down at your feet, and anytime I don't know what to do I will cast all my cares upon you." and I'm thankful. Thankful that Grayson isn't crying. Thankful for a God who bears my burdens when I don't have the strength. Thankful that I don't have to live beneath the crushing weight of it all for even a minute. Even as I'm holding onto Grayson as we pace this living room floor, God is holding on to me. He is good. He is God. He has got me.
Daniel snapped this as I gave Grayson his bath before surgery this morning. Isn't Grayson so sweet and smiley? He has been so sweet this morning. I kinda hate that I know exactly where we are going. I have sat in the surgery waiting room before. But it also makes me less nervous this morning. And I know that it has made me a better friend to other moms with kids in the hospital. So here we go... I'll update as I can. Pray for us! Pray that my heart will be settled.
|Grayson waiting to go back to surgery. It was so hard to leave him. He was screaming, I was crying.|
It is one of the worst things I have experienced as a mom.
Reading "It's Not Fair" by @unexpectedmel while we wait for Grayson to come out of surgery - and I come to this page. Exactly what I needed, exactly when I needed it. 💜 All of these verses are SO good. Psalm 18:2,6 & 2 Corinthians 12:9-10 but here is one of my favorites: You are my hiding place; you will protect me from trouble and surround me with songs of deliverance. I will instruct you and teach you in the way you should go: I will counsel you with my loving eye on you. Psalm 32:7-8
|Grayson's recovery nurse, also a friend of mine. Such a comfort!|
I feel like today has been the hardest day of recovery. Grayson was a restless little sleeper last night and instead of waking up smiling like yesterday he woke up crying. He is off of his IV and medicine routine and is on an "as needed" basis but he has needed them. A lot. It's so sad to see him cry and be so uncomfortable. We just had to pull out the big guns and I was really hoping to be feeling closer to ready to head home. So - good news: all of his vitals are looking awesome and he is down to just the pulse/ox monitor and one little tube to drain any fluids away from his surgery site. Yay for being slightly less tethered. That was miserable. Still waiting: for his output and input to normalize. He's nursing well and has eaten a little but we're still waiting on a normal diaper. So yeah, I think that's it! Thanks to everybody who has surrounded us help us through this tough this. 💜💜💜
Just waiting for discharge papers!!!! Can not wait to be home again. To sleep in my own bed and see all my kids. I have missed them like crazy. Please keep praying for Grayson!! Especially for his pain to be manageable. He also has a really sore throat that has made it hard for him to eat anything solid. Just pray he would continue to heal and recover well, and for my sanity in the meantime.
Grayson had to be on round the clock pain medicine for a few days but he gradually needed less and less. By a week plus a day or two post-op he was already totally off of his medicines and has been super happy! He's started walking this week. He's been such a fast crawler that he wasn't interested in walking for awhile but now he has started to really get the hang of it.